Name: Peter
Status: Student
Age: 15
Location: N/A
Country: N/A
Date: October 2002
Question:
I have a question and also a curiosity, You see my son who
will be 1 year old on oct 5 2002 started developing a rash at age 3 months
which further progressed in to bacterial infections and what the doctors
first thought to be a severe, The most severe case of eczyma they have ever
seen over a three month period conditions worsened in and out of the
hospital my son would get better come home and than get worse again the only
thing that seemed to help him was antibiotics. when he was in the hospital
he would get better when he would come home it would get progressively worse
over time what first started as a rash has progressed into infection after
infection with a Elevated IGE Level and now 9 months later at almost 12
months of age it has progressed with the addition of seizures.Tried DILANTIN
PHENABARBETOL AND NOW A NEW MED but does not seem to work.He was given the
diagnosis of HYPER IGE SYNDROme because of the elevated IGE Level.But out of
all the cases of
This syndrome none have reported Seizures he sometimes
has between 15 and 20 a day my QUESTION TO YOU IS could this be from a type of
bacteria or mold or could he be allergic to one of them and causing all
these complications. We give him the same antibiotics at home that he gets
in the hospital but only gets worse at home the only difference in care and
the equation is home.If you have any suggestions or have heard of any cases
familiar to this i would greatly appreciate your help if you Know of anyone
who my be of help please pass this email along to them.As me and my wife are
running out of time and options with my sons care .
Replies:
Peter,
I am truly sorry that we do not have any medical expertise in our 60+
volunteer scientist corps. I suggest you seek help at the Mayo Clinic
that often addresses rare and previously untreatable conditions.
However, I did take the time to search for information and found that
this disease is also known as "Jobs Syndrome". The following site sums
it up as to where the disease stands:
http://php.iupui.edu/~rallen/697/job.html
Unfortunately, there are no cures. However, there seems to be a number
of support organizations. These can be found by searching the web.
NEWTON is an electronic community for Science, Math, and Computer Science K-12 Educators, sponsored and operated by Argonne National Laboratory's Educational Programs, Andrew Skipor, Ph.D., Head of Educational Programs.
